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Medical Update – Spring 2017

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This is Dan finally sleeping at midnight in the ER. I get to finish watching House of Cards via Netflix on the laptop–which I now consider a super awesome investment / One of the bags of Dan’s magic antibiotic cocktail / Raine’s backpack, canteen, and booster seat ready to be picked up by Amy / A Green Chef {Affiliate Link} delivery to help me (easily?) cook some decent meals while Dan isn’t able to cook.

The prelude to winter began with Dan’s hospitalization November 1st. I spent the day wrestling with my intuition that I needed a significant break–things were getting to be too much and I felt super fragile. I talked to the HR manager at work and decided to take a leave of absence for the month of November. I came home and told Dan, only to discover he was developing a fever. I needed to take him to the ER so my abrupt decision suddenly seemed genius. Honestly, I felt like I really couldn’t put a price on the relief I felt to not have to call in and get a shift covered for the next day at 7:00 a.m.

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During a spontaneous getaway to Chicago, Dan experienced ‘Cloud Gate’ (also known as the “bean”) completely alone in Millennium Park. I love this photo because to me, it speaks to his sense of loneliness and isolation due to his disease. He would probably never agree, but this is my interpretation and my blog. Ha!

Dan spent 8 months since April 2016 struggling with recurring episodes of cellulitis in his right leg every month. It wouldn’t have been so scary if it didn’t have the possibility of a deep layer infection (flesh-eating strep for example) or  overall damage to the lymphatic drainage system due to the chronic nature–especially because he has a slightly compromised immune system and he seemed resistant to certain antibiotics. So obviously it didn’t take much for me to get him to the ER at the very first sign of the infection. For crying out loud.

As fragile as I felt that day, you would never know it. I immediately go into autopilot when needed. I examined the leg, called the doctor, packed a hospital bag, woke up Raine and took him to Rachel, drove Dan to the ER, and helped communicate his symptoms, needs, history, and meds to the nurses. Then I stocked up on snacks and drinks that Dan likes and turned on Neflix on the laptop so he could watch something while we waited. I left just before they admitted him at 2 a.m. and returned home to sleep before picking up Raine and taking him to school in the morning. After that, I loaded up on caffeine and packed Raine’s babysitter bag, fed the pets, and returned to the hospital.

I’m not going to lie. I am still traumatized by the first few days of his symptoms, admission and transfer to the hospitals, and the devastating diagnosis we were given. I have a little nip of PTSD, and when I need to go to the hospital, or Dan makes a strange noise from another room in the house, or really, anything seems odd–I am on high alert. I think most of you who have experienced these sort of medical traumas or any other trauma due to death, military duty, natural disaster, or abuse can empathize. Our bodies sense that trigger and we can’t always predict how we will react. It all happens in our bodies so fast. So far, I get super competent and organized. (And then there is a disastrous aftermath where I eat too many cupcakes, cry for days and can’t leave my bed, or drink myself into an oblivion). Or my body releases adrenaline and I mentally have no idea what to do with it. There might be twitching, raging, or crying. Who knows?

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Beer yumminess in Chicago / Doug – Now in Illinois, much more time with his bro/best friend! / Bears game in Chicago / Art in town from San Fran giving Dan a great night of memories in Chicago, too

NOT TO BE SUCH A DEBBIE DOWNER.

Dan has had a pretty enjoyable winter. The cellulitis hasn’t returned for the past 3 months. He packs in a lot of fun into his schedule when he isn’t down and out after chemo rounds. He is taking full advantage of seeing friends who fly into Chicago, his brother and family, and friends here in central Illinois. Not to mention me and Raine–He gets a dose of us everyday and usually the pros outweigh the cons. Ha!

Also, every three months Dan has scans to monitor previous tumors and potential new ones–it initiates major scanxiety and it’s no joke. Recent bummer news and losses in the small NSCLC community we are a part of further discouraged us recently. However, upon the most recent review, March 1st, everything remains stable.

[High five!]

If you would like to be hands-on helpers, we now have a Caring Bridge account that lists tasks on a calendar as requests for help. Check it out. It’s in early stages but I’m trying to update it daily. My blog posts related to his condition will also be copied to that account.

 

 

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8 Comments

  • Melissa

    high five lovely!!!!!! Yay for stable results on the scan. I love you three, miss you tremendously and cannot wait to see you next month!!!!

    Also, cheers to you on this International Women’s Day – you are the strongest woman I have ever met and I am so proud to be your friend and have you all in my life. I cherish you.

    xoxoxoxoxoxo

  • April

    Love you, girl. Keep up the incredibly demanding but rewarding work. Prayers of uplift from us are sent your way daily.
    You’re an angel, and a lovely one at that. ❤️️

  • Annalisa

    You are such a badass mamma rockstar inspiration. Sending oodles of love and support your way. You are a beam of joyous light and I agree with Mel’s comment; All hail the superwoman Leah who embodies strength and grace and fierce honesty! So lucky to know you xox

  • Vaughna Cochenour

    You are such an amazing family. I really enjoy reading your posts, I feel like I am right there with you in every breath, tear, and warp speed critical alert. You are all amazing, truly! Much love to you!

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