• Adenocarcinoma,  ALK,  Cancer,  Dr. Kumar,  Metastasis,  NSCLC,  Scanxiety

    Bone Scanxiety

    Dan hadn’t caught up mentally and I saw he was disappointed. Why an x-ray? It’s just his leg falling asleep when he is in bed at night – probably because of a pinched nerve in his back. However, I understood what Dr. Piers wasn’t directly saying–check the spine for cancer. I made the decision in a split second. “I want the x-ray.” Get it done. In the meantime, Dr. Piers prescribed Gabapentin at a low dose to try at bedtime for the pain. At this point, I don’t care that we are adding one more ingredient to his pharmaceutical cocktail. So be it. I am vehement that Dan gets better sleep.…

  • Adenocarcinoma,  ALK,  ALK-Inhibitors,  Cancer,  Chemotherapy,  Dan,  Dr. Kumar,  Lung Cancer,  Medical Jargon,  Metastasis,  NSCLC

    Medical Update: More MRIs and Stopping Chemo

    “And one has to understand that braveness is not the absence of fear but rather the strength to keep on going forward despite the fear.” – Paulo Coelho Based on MRI results in August, we spoke with our new radiation oncologist, Dr. Mackenzie McGee with OSF, as well as the opinion of Dr. James L. McGee, and have increased the frequency of these scans and now have them at the gamma knife center in Peoria. There is a spot that could be brain mets but it hasn’t changed recently. It will be more closely monitored if they find enhancement, gamma knife radiology would be the next step. In other news: With…

  • Adenocarcinoma,  ALK,  Cancer,  Chemotherapy,  Dan,  Dr. Duffy,  Dr. Kumar,  Hospital Stays,  Illinois,  Lung Cancer,  Rachel,  Rita

    A First Medical Update in Illinois

      I haven’t written a medical update in a long time. I know I shared the details in My Mega Post, but I haven’t kept everyone informed after that. To be honest, after his seizure in February and the “your husband’s heart might collapse” scare in the beginning of April, I was running on empty and not feeling very eager to communicate because I didn’t feel very inspired about life in general, let alone our family’s situation. I mean, I had my moments, but they just weren’t woven together in my mind for me to later sit down and write about. However, y’all deserve an update!  So much has changed. First of all, he…