• 2016,  Alexis,  Art,  Dan,  Flowers,  Grateful,  Hope,  Leah,  Logan,  Music,  Peoria,  Raine

    Roots, Interests, and Limitations

    For making a big decision about how you are going to spend the majority of your minutes in a day, especially in such a way that you might be provided compensation for your time, I have always failed pretty miserably. I think too big, I think too small, I hop around with ideas, or I avoid thinking at all and keep with the status quo for fear of change. My best advice is to go back to your root values and strongest interests, and then be really honest with yourself about your limitations. That was my starting point when I searched for employment in Peoria last November. I took 2 hours…

  • 2016,  Advice,  Anxiety,  Awesomeness,  Beer,  Chicago,  Dan,  Grateful,  Leah,  Memories,  Music,  Optimism

    2016 Put Me in the Same Room as Robert Plant

      On a whim, as I sometimes do when it comes to concerts, I bought tickets for myself and a friend to see The Milk Carton Kids at the Vic in Chicago. The exciting news was that it was a performance as part of a concert to raise funds for refugees and would also feature Emmylou Harris and friends. I could check Emmy off of my concert bucket list! Guests included Patti Griffin, Steve Earle, and Buddy Miller as well as Emmylou’s special guest, Ruby Amanfu. As with anything I plan ahead, and especially if it involves travel, I commit myself while completely thrilled about the idea of it, and then the week of…

  • Adenocarcinoma,  ALK,  Announcement,  Anxiety,  Cancer,  Chemotherapy,  Drink,  Dundee,  Flowers,  Lung Cancer,  Music,  Nature,  NSCLC,  Parenting,  Photos,  Quotes

    Medical Update & Announcement

    Hello, friends. I write to you this afternoon from my kitchen table with Sufjan Stevens playing and my laptop flanked by a glass of 2014 Giovanni and a small bowl of tiny blueberries from our yard. It’s not a bad June afternoon. Which reminds of one of Dan’s all time favorite songs… Dan is doing very well. We are 9 months post-diagnosis of stage IV lung cancer (metasticized NSCLC Adenocarcinoma) and feeling very grateful for his subsequent ALK genetic diagnosis because we feel gifted with more time than we would otherwise truly be running out of. We were given a family getaway to Sunriver Resort by Seeds of Hope and enjoyed a long…

  • Beer,  Drink,  Gifts,  Grateful,  Leah,  Music

    Lovely Gifts: My Piano

    Words can not express my gratitude and excitement to get a piano! I took lessons for ten years in my childhood and played for many years while I lived with my parents. It had been two years since I touched a piano and 13 years since I had a piano in my home. It has been a complete joy to sit down and remember how to play again, and how incredible it felt to play in my soul. I am working on “Clair de Lune” for Dan and “Jingle Bells” for Raine. Thank you to my wonderful husband for understanding how valuable and therapeutic it would be for me to…

  • Anxiety,  Char,  Crappy News,  Dreams,  Family,  Grieving,  Honestly,  Music,  PTSD

    Saturday, November 15 2014

    This week I had my first dream in which I was living and Dan wasn’t. I don’t think my entire life, I have had a dream like that. It was confusing–as most dreams are–with jumbled characters and circumstances. I do remember that I was in a building that housed many rooms like a school, as well as a room for movies. There was music playing in certain rooms. There were groups of people and friends. I think I was in Colorado because Hattie and Sarah and Ryan were there. I went to talk to them at one point about how I could no longer watch / listen to the things…