• Adenocarcinoma,  Alcensa,  ALK,  ALK-Inhibitors,  Anxiety,  Cancer,  Corey,  Dan,  Honestly,  Leah,  Lung Cancer,  Nick,  NSCLC,  Radiation,  Scanxiety,  Surgery,  Surgxiety,  Targeted Radiation,  Tumors

    Medical Update – Shoulder Surgery & Radiation Results

    We spent a Saturday evening in Chicago celebrating the 40th birthday of our bestie, Corey. (Shout out to Corey! He is the reason we ended up dating and getting married.) Dan had just enough energy to live it up and enjoy being with friends. So this guy likes to keep me on my toes. Wednesday Dan will have surgery for a complete shoulder replacement. First thing I know is that his shoulder hurt while golfing, and then all of the sudden we are in for a matrix bionic shoulder. Ok, that might be extreme, but I have seen the sling he will need to use and it kind of makes…

  • Adenocarcinoma,  Anxiety,  Cancer,  Coping,  Dan,  Gamma Knife,  Lung Cancer,  Metastasis,  Parenting,  Radiation,  Raine,  Targeted Radiation,  Tumors

    Talking to Raine About Daddy’s Radiation

    It was a quiet Monday night. We finished dinner and Raine was anxious to watch the tv show The Voice, his latest obsession (he is rooting for Noah). Rather than head for the living room, I asked him to stay at the table for a talk. I was flying by the seat of my pants in an attempt to tell him about Dan’s radiation appointment the following morning. Dan didn’t even know it was coming. *** First, I busted out his creepy puzzle that reveals all of the anatomy of our bodies. It lets Raine place puzzle pieces in layers–skeleton, organs, muscle, and skin, as well as the clothing worn on…

  • Adenocarcinoma,  ALK,  Cancer,  Gamma Knife,  Lung Cancer,  Metastasis,  NSCLC,  Radiation,  Tumors

    Medical Update Update – Some Zapping

    Classic doctor office wait. I suppose I could have waited one day for the update, but for once I wasn’t on top of my game and didn’t even realize there was an appointment this morning at the gamma knife center. I thought Dan was only getting an MRI, but he was actually discussing the results of last Tuesday’s MRI. The decision is to perform targeted radiation. The focus is three areas, two of which could have been remnants of his original mets that were initially treated when Dan had whole brain radiation. The third is the spot we recently decided to watch more closely. This doctor wants to target it…

  • Adenocarcinoma,  ALK,  Anxiety,  Beer,  Bipolar Disorder,  Cancer,  Coping,  Crappy News,  Dan,  Flowers,  Grieving,  Leah,  Lung Cancer,  Metastasis,  NSCLC,  Radiation,  Scanxiety,  Tumors

    After MRI Results

    Dan is super chill. There just isn’t much that can ruffle him. He gets scanxiety (scan anxiety) just like the best of us, but he never really worries or freaks out. The only way I know how to describe him to people is that he is “zen.” There’s not much that can ruffle his feathers. He keeps an even temper, always maintains his sense of humor, and is focused on the simple things each day. I know this sounds super amazing–and I get that. However, I just have to share a caveat that I am MARRIED to him and have loved him for nearly 15 years and that which is the…

  • Adenocarcinoma,  ALK,  Cancer,  Chemotherapy,  Dan,  Dr. Duffy,  Flowers,  Grateful,  Holidays,  Hospital Stays,  Leah,  Medical Jargon,  Metastasis,  Nature,  NSCLC,  Oregon,  Photos,  Radiation

    Thanksgiving 2014

    One week ago, Dan was hospitalized again. Our experience taught me many things. #1, of course, again, is that everything around us is beautiful and luxurious. We are so lucky to have everything in place as it is, and enjoy it how we can. The comfort of our own bed, the taste of ice water, the moment when the dog nudges us in earnest, the laughter of Raine. We have a beautiful home. We have a car that isn’t causing us trouble. We have doctors who are a formidable and passionate team. We have each other. There are hard moments where I feel like I can’t reach across my anxiety…

  • Cards,  Char,  Chemotherapy,  Dan,  Friends,  Joy,  Laughter,  Leah,  Photos,  Radiation,  Raine

    One Week In Photos 10/14 – 10/21

    Oncology waiting room selfie. I’m looking pretty tired! We love the cards and packages we are getting! Keep it coming! It is so awesome. We have had several people send notes from classrooms and they are so entertaining and sweet! It was a busy week of each of us trying to get back to a little work, help from friends visiting from Illinois, Dan attending a Timbers game and out with friends to watch the Bears, and appointments and decisions regarding his treatment. He is still feeling good with no side effects from his radiation treatments other than irritated hair follicles and some acne. We believe he has accumulated more…

  • Advice,  Alternative Treatments,  Awesomeness,  Cancer,  Chemotherapy,  Dan,  Dr. Duffy,  Family,  Gratitude,  Honestly,  Leah,  Love,  Medical Jargon,  NSCLC,  Optimism,  Oregon,  Photos,  Radiation,  Raine

    Thursday, October 16, 2014

      Every day is about adjusting to our new normal. But our new normal shifts like sand under our feet. I just keep walking in the sand, letting it slide around me. At least I have his hand in mine. Today I slept in while Dan and Char attended to Raine. I showered and took Raine to daycare. I went into Dry Goods and answered questions for the new manager. I bought several vintage suitcases. I upgraded our small garbage bin to a large garbage bin at Recology and also purchased a large bio-hazardous safety waste container for Dan’s used Lovenox needles. Debbie at customer service gave us a free month…