• Adenocarcinoma,  ALK,  Cancer,  Dr. Kumar,  Metastasis,  NSCLC,  Scanxiety

    Bone Scanxiety

    Dan hadn’t caught up mentally and I saw he was disappointed. Why an x-ray? It’s just his leg falling asleep when he is in bed at night – probably because of a pinched nerve in his back. However, I understood what Dr. Piers wasn’t directly saying–check the spine for cancer. I made the decision in a split second. “I want the x-ray.” Get it done. In the meantime, Dr. Piers prescribed Gabapentin at a low dose to try at bedtime for the pain. At this point, I don’t care that we are adding one more ingredient to his pharmaceutical cocktail. So be it. I am vehement that Dan gets better sleep.…

  • Adenocarcinoma,  Alcensa,  ALK,  ALK-Inhibitors,  Anxiety,  Cancer,  Corey,  Dan,  Honestly,  Leah,  Lung Cancer,  Nick,  NSCLC,  Radiation,  Scanxiety,  Surgery,  Surgxiety,  Targeted Radiation,  Tumors

    Medical Update – Shoulder Surgery & Radiation Results

    We spent a Saturday evening in Chicago celebrating the 40th birthday of our bestie, Corey. (Shout out to Corey! He is the reason we ended up dating and getting married.) Dan had just enough energy to live it up and enjoy being with friends. So this guy likes to keep me on my toes. Wednesday Dan will have surgery for a complete shoulder replacement. First thing I know is that his shoulder hurt while golfing, and then all of the sudden we are in for a matrix bionic shoulder. Ok, that might be extreme, but I have seen the sling he will need to use and it kind of makes…

  • Adenocarcinoma,  ALK,  Anxiety,  Beer,  Bipolar Disorder,  Cancer,  Coping,  Crappy News,  Dan,  Flowers,  Grieving,  Leah,  Lung Cancer,  Metastasis,  NSCLC,  Radiation,  Scanxiety,  Tumors

    After MRI Results

    Dan is super chill. There just isn’t much that can ruffle him. He gets scanxiety (scan anxiety) just like the best of us, but he never really worries or freaks out. The only way I know how to describe him to people is that he is “zen.” There’s not much that can ruffle his feathers. He keeps an even temper, always maintains his sense of humor, and is focused on the simple things each day. I know this sounds super amazing–and I get that. However, I just have to share a caveat that I am MARRIED to him and have loved him for nearly 15 years and that which is the…

  • Cancer,  Chemotherapy,  Dan,  Grateful,  Home,  Moving,  Raine,  Scanxiety

    We Made It To Gillman

      I am too exhausted to share about our moving week! The good news is IT IS OVER. We have officially made it to Gillman. We have beds to sleep in, the pets know where to find their food, our couches are situated, and the tv/electronics are in working order. Hallelujah. The weight and burden of another move (with another downsize) just one year after we relocated from Oregon to Illinois has now finally been lifted from us. Even Rocco and Hobbes seem to sense that the ‘Great Anxiety’ has passed. With their relief, they are napping hard and basking in the sunlight of their beautiful new back yard….Or if it is…

  • Announcement,  Flowers,  Grandpa Don,  Grieving,  Home,  Honestly,  Hope,  Illinois,  Life Lately,  Moving,  Scanxiety,  Washington

    We Are Moving (Again)

          In 14 days, we are moving to my dad’s house in Washington. We will also get another round of scan results. Honestly, I can’t figure out what I want to write about. I feel numb with exhaustion. The move wasn’t an easy decision. There were so many different layers to our choice. I still can’t exactly put into words the myriad of emotions I have had about it, back and forth, over the last six months. I still find myself shocked over and over again at how life is so unpredictable, for better or worse. We’d appreciate your thoughts and good vibes for the next two weeks.    

  • Announcement,  Anxiety,  Art,  Cancer,  Chicago,  Dan,  Doug,  Food,  Hospital Stays,  Lung Cancer,  Lung Cancer Community,  NSCLC,  PTSD,  Scanxiety

    Medical Update – Spring 2017

    The prelude to winter began with Dan’s hospitalization November 1st. I spent the day wrestling with my intuition that I needed a significant break–things were getting to be too much and I felt super fragile. I talked to the HR manager at work and decided to take a leave of absence for the month of November. I came home and told Dan, only to discover he was developing a fever. I needed to take him to the ER so my abrupt decision suddenly seemed genius. Honestly, I felt like I really couldn’t put a price on the relief I felt to not have to call in and get a shift…

  • Awesomeness,  Bipolar Disorder II,  Birthday,  Celebrate,  Chemotherapy,  Dan,  Depression,  Grateful,  Halloween,  Holidays,  Leah,  Lung Cancer,  Memories,  Nature,  NSCLC,  Photos,  Raine,  Rocco,  Scanxiety,  Vineyard

    My Birthday, Halloween, & Scan Results

      (This is a long overdue post that sat in my draft folder for over a month! Yikes!) For me, October was a blur of changing leaves and trying medications. I am really proud to say that I worked hard at getting healthier and by now, December, I am stable on some fantastic drugs (the disolve tab Lamichtal is pretty rad!) and feeling very stable, with a greater clarity of mind and ability to experience joy again. Just in time for the magical holiday season, so I truly could not feel more grateful. I am a busy worker bee with 4 jobs (more about that later!) and Raine continues to…

  • Adenocarcinoma,  ALK,  Anxiety,  Art,  Cancer,  Carlton,  Celebrate,  Chemotherapy,  Dan,  Gratitude,  Leah,  Lung Cancer,  Lung Cancer Community,  NSCLC,  Oregon,  Raine,  Scanxiety,  Vineyard

    June Recap

    June was a bit of a blur, awaiting Dan’s CT scan, awaiting Dan’s results, and blowing off steam afterward. I’m so sorry to have left everyone hanging after my announcement and no follow-up post! For shame. {I hope you all concluded that no news is good news!} I recently read “10 Tips for Coping with Scanxiety” by Tori Tomalia, a two-time cancer survivor currently living with stage 4 NSCLC. She contributes regularly to Cure, where the tips were posted online in February this year. (I found her through Facebook friends, where she is cleverly known as A Little Lytnin’ Strikes Lung Cancer.) I am the caregiver and not the patient, but her…